Latest News & Events
VOICE 2025
Dates are now set for the next course - 31st August to 5th September 2025 - clicke here for more information.
Data and Artificial Intelligence
Recently there has been a lot of discussion and debate on Data and AI in medical research. Imperial College have produce an excellent guide to support PPI groups and to enable us to navigate this new world. It was produced in collaboration of the public and well worth a read. Navigating Digital Health
VOICE 2024
Students from this years course give their views on the week and what it will mean for them going forward.
https://www.bci.qmul.ac.uk/general-news/2024/10/helping-cancer-patient-advocates-find-their-voice/
New Chair
At our AGM in August 2024 we elected Dave Chuter as the new chair of ICPV. We also elected two new trustees - Hilary Stobart and Shaun Hill.
Our past Chair, Adrienne Morgan, will remain a trustee and has also been elected President.
Summer School 2024, University of Sussex
Once again we were generously hosted by Lesley Fallowfield and SHORE-C for two days of stimulating presentations and discussions on topics which ranged from digital consent and robots to does stress cause cancer.
We had a mix of ICPV members plus repesentatives from Make2ndsCount, Fight Bladder Cancer UK and Strive for Five
https://shore-c.sussex.ac.uk/index.php https://x.com/sussexshore_c
ABS COnference, Bournemouth May 2024
ICPV members attended this years event promoting the work we do and interacting with the surgical community.
Benefits and Risks of Breast Cancer Treatments: Patient Representation
ICPV members discuss their involvement with the Early Breast Cancer Trialists Collaborative Group (EBCTCG). The key paper from the research was awarded ‘The BMJ UK Research Paper of the Year 2023’. Click here to listen and to check out the work of the team.
2024 UK Interdisciplinary Breast Cancer Symposium
On 22-23 Jan ICPV members and other patient advocates attended the UKIBCS
Our very own Lesley Stephen gave the opening address and others were involved in co-chairing plenary and parallel sessions. It was a truly interdisciplinary event.
Thank you to Breast Cancer Now for enabling this. And we wish Delyth Morgan all the best for her retirement.
Let's Talk About Sex
More is now known about the long-term effects of some breast cancer treatments. ICPV carried out a survey of patients and health professionals which clearly highlighted the issues
Click here to download the poster produced from the survey
Adobe Acrobat document [344.1 KB]
KORTUC Trial
Recently Mairead MacKenzie joined the KORTUC Trial team on site visits in India looking at the possiblilty of developing PPI activities.
Breast Cancer Mortality
ICPV members Hilary Stobart and Mairead Mackenzie have been involved with Carolyn Taylor and the team at the Nuffield Department of Population Health, University of Oxford, Oxford, UK for some time.
A key paper looking at breast cancer mortality has been published which shows that more than 90% of women diagnosed with early-stage breast cancer will survive the disease for 5 years or more.
That’s thanks to research. And to the people who take part.
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