Trustees
ICPV Trustees meet every three months via Zoom, at other times business is dealt with by email.
If you have any questions please contact the Chair – Dave Chuter
or Secretary
Adrienne Morgan
Adrienne was diagnosed with breast cancer in 2005 and secondary breast cancer in 2010.
Adrienne is a PhD medical research scientist and worked for 20 years in academia and industry. After breast cancer she worked in the cancer charity sector, spending three years as the staff scientist
at Children with Leukaemia, and then a year as the secretariat for Cancer52 – an umbrella organisation that represents the less common cancers.
She worked as a patient advocate with Breakthrough and Breast Cancer Campaign following her diagnosis and now with the new merged charity Breast Cancer Now. She has been involved with Breast Cancer
Now's Cell and Tissue Bank since its inception and is a valued member of the Barts Cell Research Team. She is a lay member of several Clinical Trial Management and Working Groups and a familiar
independent patient voice in Q and A sessions at cancer research conferences.
Adrienne was elected ICPV President in 2024
Dave Chuter - Chair
David lives on the South Coast in West Sussex, and before retirement was a Print Consultant specialising in Labels for the Food, Pharmaceutical and Beauty packaging.
David was diagnosed with Oesophageal cancer and treatment was an Oesophagectomy in 2006, he set up a support group with the help of the Hospital Upper GI team in December 2006 which is still running today and supports patient and carers across the UK with virtual and face to face meetings.
David’s interest in research came from the new patients at the support group asking about the trial they had been invited to join, so he joined the local Cancer Partnership Research Group to ensure he help patients make an informed decision about their treatment.
David Chaired the OPA (Oesophageal Patients Association) from 2017 t0 2020, and currently is the Vice Chair of the Board for DiCE (Digestive Cancers Europe) and Chair of the DiCE Patient Committee.
David has a number of other roles which include: Lead Governor for the Royal Surrey Cancer Centre, PPIE Representative to the NIHR Kent, Surrey and Sussex CRN Partnership Board, Patient Advocate for the NIHR Academy, Lay Member of the NHS England Leadership Academy, Chair of the EORTC Patient Panel, PPI Interview Panel member for the NIHR Personal / Fellowship Awards.
Also as a Patient Advocate, David is co-applicant and co-author on a number of research trials including one of the Cancer Grand Challenges with Team eDyNAmiC.
David has been a member of ICPV since 2014 and attended the VOICE course in the same year.
Mairead MacKenzie
Mairead was diagnosed with breast cancer in 2002. She had chemotherapy, followed by a mastectomy with immediate reconstruction, radiotherapy and endocrine therapy. Since her treatment Mairead developed capsular contraction in her reconstruction which has resulted in the need for further surgery. This has prompted Mairead to feel strongly about the issues and potential problems patients face with the long term effects of cancer treatment.
Mairead has been a member of ICPV since 2009 and currently sits on a number of trial management groups especially in the areas of treatment reduction annd targeted therapies. She is a member of the Breast Cancer Campaign Now Tissue Bank Access Committee, the ICR-CTSU Breast Sytemic Therapy Trials Steering Group, the ICR CTSU PPI Group and has also been involved with the work of the Early Breast Cancer Trialists' Collaborative Group (EBCTCG).
Mairead is now retired and enjoys gardening, needlework, reading, walking and travelling.
Elspeth Banks
Elspeth’s career was in education and before she retired was a secondary headteacher.
Following a diagnosis of malignant melanoma and initial treatment in 1996 Elspeth had recurrences in 2002 and 2004. During this period she had extensive surgery and participated in an EORTC clinical trial.
In 2011 she was invited to join several research groups at the Glasgow Clinical Trials Unit
Her involvement extended to other organisations including the NCRI LWBC Group, the Scottish Cancer Prevention Advisory Committee, the Scottish Cancer Research Network 'Working With Industry' Forum and the ECMC Network Steering and PPI Groups.
Elspeth is a co-applicant and a member of steering groups or trial management groups in respect of a number of clinical trials and intervention studies across the broad range of tumour types and responds to many requests for guidance and advice in reviewing protocols, funding applications and patient information.
She is active in organizing and encouraging patient and public involvement in research activities.
Hilary Stobart
With a work background in radiotherapy physics and IT, Hilary was diagnosed with breast cancer in January 2009 and participated in a radiotherapy research trial as part of her treatment. This experience showed her the progress that had been made in the treatment of breast cancer, and she realised that this was due in large part to the very many patients willing to take part in research. Hilary volunteered for three years at Nottingham University Hospitals Trust discussing consent for tissue donation with breast cancer patients and now is passionate about bringing the patient voice into research. She became a member of Independent Cancer Patients' Voice in 2011and a trustee in 2024. She has been involved in review and discussion of numerous trials and studies, both clinical and laboratory-based. Additionally, she is currently a member of the patient advocate team at CRUK RAD-NET Cambridge.
Hilary is a TMG member for a number of UK funded studies, including PRIMETIME, HER2-Radical, and SMALL. She was an advocate member of the international CRUK DCIS Grand Challenge project, PRECISION, and is currently part of the EU Horizon project, PRE-ACT. She has served on the NIHR RFPB East of England funding board and the BCN Catalyst committee, and is a member of Breast Cancer Now's Tissue Bank Advisory Council. She also served on the Breast International Group Patient Partnership Initiative.
Robert Flavel
Shaun Hill
Ceri Steele
Steve Clark
Print 