Science for patient advocates

A study week taking patient advocates from bedside to bench

VOICE Students and Tutors 2014

Members of ICPV are actively involved in many areas of research. To facilitate and enhance our role in these activities, members aim to understand the fundamentals of cancer, study design and current areas of controversy and research.

 

Much of this is gained through experience. However, working with the internationally renowned Barts Cancer Institute we have developed a tailor-made course which provides a week-long intensive training in basic cancer biology, introduction to research terminology and study design, and critical evaluation of research proposals and scientific papers. We have called this course VOICE (Vision On Information, Confidence and Engagement) Science for patient advocates. This course is unique, the only course of this type in the UK.

 

The next VOICE Course will be once again held at Barts Cancer Institute from 3-7 September, 2018. Further details will be available shortly. 

 

 

VOICE aims to give participants:

  • An introduction to basic cancer biology

This  will include sessions on what cancer is, how it is caused, how it develops and how  it is detected and treated. Course participants  will spend time in the research laboratories to help them to build their understanding.

  • An introduction to epidemiology, statistics and reading scientific papers

This  will include sessions on on understanding statistics, understanding risk, epidemiology and how to read and interpret scientific papers.

 

We hope that this course will give participants increased  confidence to become more effectively involved in cancer research as patient  advocates.

VOICE 2016 Information
VOICE 2016 flyer.pdf
Adobe Acrobat document [669.3 KB]
Quality Advocacy Needs Quality Education
Poster presented at NCRI 2014
ICPV NCRI 2014.pdf
Adobe Acrobat document [363.5 KB]

 

For information on forthcoming courses please contact us.

 

AllTrials logo

News

Warwick Clinical Trials Course
12 members of ICPV attended a residential Clinical Trials Course at the University of Warwick from 17th to 19th April 2018. The course was run by Professor Janet Dunn and covered the different types of studies undertaken; consent; trial design; statistics and bringing a drug to market. One of the highlights of the course was a visit to the West Midlands Surgical Training Centre where delegates had the privilege of seeing real body parts and having basic anatomy explained to them by the team. The delegates would like to thank Professor Janet Dunn for her outstanding enthusiasm and for her generous hospitality.

Open letter calling on Government to prioritise interests of cancer patients in Brexit negotiations

ICPV have come together with 18 other cancer charities to put our names to an open letter to Government. We want Government to prioritise seeking continued alignment with the EU drug licensing process and Clinical Trials Regulation after Brexit. It is hoped this letter will be published in the national press in the near future.
See below to read.

Open Letter to Government
ACMC EMA letter_FINAL v2.pdf
Adobe Acrobat document [363.5 KB]

2017 Summer School

The 2017 ICPV Summer School was held over two days in June at Stirling University. The theme of the event was Cancer Survivorship and Living Well Cancer. Click below for details of the course. More details.

VOICE 2016

A snapsot video of the the 2016 course is now available on YouTube VOICE2016

eCancer Videos

At the BACR/ECMC conference in July Maggie Wilcox and Mairead Mackenzie were persuaded to speak to the camera. Maggie gave a background to ICPV and our aims and objectives. While Mairead focused on her specific interests and activities. To view follow the links below.

Maggie Wilcox

Mairead MacKenzie

July 2016 Conferences

ICPV members were busy this week with two conferences. The BACR/ECMC Joint Meeting on Therapeutic Interventions for Cancer Prevention was held in Bristol July18-19. The UK Breast Cancer Research Symposium was held in London from July 22-23. Click here for more information.

UK Therapeutic Cancer Prevention Network (UKTCPN)

An update from this new group was presented to the ECMC Annual Network Meeting in May 2016. Click here to download and read. 

UNITE2CURE

Call for immediate change to European Paediatric Medicine Regulation to save more lives of children and teens with cancer.
A few basic changes to European Law could speed up access to newer, kinder and potentially better drugs for more children and teenagers with cancer. Click to Sign the petition 

TRACERx

Two years on from the start pioneering TRACERx lung cancer study. Click here For the latest news and patient views on this study. 

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