Independent Cancer Patients' Voice was started in July 2009 with a group of breast cancer patients with a keen interest in research. We all felt strongly that we wanted to be a part of improving the outcome for future patients.
With a range of professional backgrounds and of patient experiences, most of us had already been involved with breast cancer charities and three of us were members of the NCRI Breast Clinical Study Group.
Together we felt that there was a need for a patient-led organisation to bring the views and experience of cancer patients and their families and carers into the cancer research community. And so, ICPV was born – to provide a forum for learning and debate through which patients could have an effective independent voice in research.
We believe that clinical research is improved by patients being partners with clinicians and healthcare professionals, rather than passive recipients of healthcare.
If you are interesting in joining us we have put together a short brief about being a member of ICPV. To read this please click here.
Some people have been kind enough to give us feedback about involvment in research and clinical trials. We would like to share some of those kind words. Read more
2017 Summer School
The 2017 ICPV Summer School was held over two days in June at Stirling University. The theme of the event was Cancer Survivorship and Living Well Cancer. Click below for details of the course. More details.
A snapsot video of the the 2016 course is now available on YouTube VOICE2016
At the BACR/ECMC conference in July Maggie Wilcox and Mairead Mackenzie were persuaded to speak to the camera. Maggie gave a background to ICPV and our aims and objectives. While Mairead focused on her specific interests and activities. To view follow the links below.
July 2016 Conferences
ICPV members were busy this week with two conferences. The BACR/ECMC Joint Meeting on Therapeutic Interventions for Cancer Prevention was held in Bristol July18-19. The UK Breast Cancer Research Symposium was held in London from July 22-23. Click here for more information.
UK Therapeutic Cancer Prevention Network (UKTCPN)
An update from this new group was presented to the ECMC Annual Network Meeting in May 2016. Click here to download and read.
Call for immediate change to European Paediatric Medicine Regulation to save more lives of children and teens with cancer.
A few basic changes to European Law could speed up access to newer, kinder and potentially better drugs for more children and teenagers with cancer. Click to Sign the petition
Two years on from the start pioneering TRACERx lung cancer study. Click here For the latest news and patient views on this study.