Independent Cancer Patients' Voice was started in July 2009 with a group of breast cancer patients with a keen interest in research. We all felt strongly that we wanted to be a part of improving the outcome for future patients.
With a range of professional backgrounds and of patient experiences, most of us had already been involved with breast cancer charities and three of us were members of the NCRI Breast Clinical Study Group.
Together we felt that there was a need for a patient-led organisation to bring the views and experience of cancer patients and their families and carers into the cancer research community. And so, ICPV was born – to provide a forum for learning and debate through which patients could have an effective independent voice in research.
We believe that clinical research is improved by patients being partners with clinicians and healthcare professionals, rather than passive recipients of healthcare.
If you are interesting in joining us we have put together a short brief about being a member of ICPV. To read this please click here.
Some people have been kind enough to give us feedback about involvment in research and clinical trials. We would like to share some of those kind words. Read more
OPTIMA is a patient driven clinical study for people with hormone sensitive early breast cancer.
On the 25th March we held an interactive talk and discussion on immunology.
The talk was given by Dr Edd James, Cancer Immunologist from the university of Southampton. The tallk is now available on YouTube - click here to listen.
Long Term Survivor Study
Continuum Life Sciences are looking for volunteers who have survived aggressive, difficult to treat cancer against all odds to take part in their Long-Term Survivor of Cancer Study. For more information and how you can join go to their website.
Save the planet and donate to ICPV - send ecards go tour Fundraising page for mor information.
FAST-Forward Trial Results
A one-week course of radiotherapy in fewer but larger daily doses was found to be as safe and effective as standard three-week therapy for women following surgery for early stage breast cancer. Trial results now published. Two ICPV members provided the PPI for this key trial. Full details can be found on the ICR Website.
ICPV Brighton Summer School Aug 2019
ICPV was once again hosted by SHORE-C at the University of Sussex. Click here for more info.
San Antonio Breast Cancer Symposium, 2018
ICPV member Pat Fairbrother attended this event on an Alamo Foundation Scholarship. Click here to read her review.
Gap Analysis in Breast Surgery Published
The 2013 Breast Cancer Campaign gap analysis established breast cancer research priorities without a specific focus on surgical research or the role of surgeons on breast cancer research. This Review aims to identify opportunities and priorities for research in breast surgery to complement the 2013 gap analysis. Click here for more information
ICPV Review 2018
We have at last published a new edition of our review. This was achieved by a grant from Novartis. Click here for more information.
Award for ICPV Member
Many congratulations to ICPV member Margaret Grayson. On 21 April 2018 she received the Iris Colvin Lifetime Achievement Award for Health, presented by the Women’s Forum of Northern Ireland. This is very well deserved for her tireless work in furthering cancer research especially in Northern Ireland.
At the BACR/ECMC conference in July Maggie Wilcox and Mairead Mackenzie were persuaded to speak to the camera. Maggie gave a background to ICPV and our aims and objectives. While Mairead focused on her specific interests and activities. To view follow the links below.