About us

Independent Cancer Patients' Voice was started in July 2009 with a group of breast cancer patients with a keen interest in research. We all felt strongly that we wanted to be a part of improving the outcome for future patients.

With a range of professional backgrounds and of patient experiences, most of us had already been involved with breast cancer charities and three of us were members of the NCRI Breast Clinical Study Group.

Together we felt that there was a need for a patient-led organisation to bring the views and experience of cancer patients and their families and carers into the cancer research community. And so, ICPV was born – to provide a forum for learning and debate through which patients could have an effective independent voice in research.

We believe that clinical research is improved by patients being partners with clinicians and healthcare professionals, rather than passive recipients of healthcare.

To find our who we are please read the short profiles of some of our members.

If you are interesting in joining us we have put together a short brief about being a member of ICPV. To read this please click here.

Testimonials

Some people have been kind enough to give us feedback about involvment in research and clinical trials. We would like to share some of those kind words. Read more