Welcome to Independent Cancer Patients' Voice
Independent Cancer Patients' Voice (ICPV) is a patient advocate group independent of established UK cancer charities and aware of the value of medical research to both public health and to the national economy.
Our Aims
Our aim is to improve existing treatments for every cancer patient and develop new treatments by bringing the patients’ voice into clinical research.
We do this by:
1.educating, supporting and mentoring patients so that they can have an equal voice with clinicians and researchers and
2.bringing the patients’ voice to clinicians and researchers – i.e. by being patient advocates in clinical research so that this research takes into account the patients’ (and carers, relatives etc) viewpoint to improve outcomes (cancer mortality, morbidity, quality of life) for all people affected by cancer (patients, relatives, carers).
We are informed and committed patient advocates and we can play an increasingly effective role in educating both potential patients and professional staff as to the benefits of clinical trials and research.
The core members of our group are located throughout the UK and we have a good mix of business, healthcare and scientific knowledge and experience. We also have a strong network of individuals and groups of cancer (and non-cancer) patients to help us to determine the research questions that cancer patients would like answered and to raise the profile of clinical trials among the patient community and thus increase accrual as well as improve outcomes for future patients.
We have an active online discussion group and members where members can exchange views and review research papers.
We have the full support of the professional members of the NCRI Breast Clinical Study Group (and from many research centres) with a keen interest in teaching us at study days on the science/biology/genetics of cancer and the development of new treatments.
What we do
We involve patients in clinical research (including clinical trials, working with clinical/academic units, tissue banks etc) putting the patient perspective and helping to improve clinical research. This, we believe, leads to better recruitment to clinical trials and faster improvements in treatments and outcomes for all cancer patients. Read more
About us
If you're interested in our work and would like to support us, read about us and the projects we've contributed to in the past.
News
Fun Walk
Some members of ICPV are taking part in the Barleylands Farm Fun Walk on Sunday 27th May. They will be walking 3miles round the farm. If you are interested sponsoring them please got to http://uk.virginmoneygiving.com/team/barleylands
If you want to join or support the group on the day please go to the Barleylands website for directtions. http://www.barleylands.co.uk
Two Day Autumn Workshop
University of Brighton
7-8 September 2012
The workshop is to be hosted by Prof Lesley Fallowfield
For more information go to our Study Days page
NCRI Conference 2011
ICPV presented a poster at this year's NCRI Conference in Liverpool. The conference ran from 6-9 November at the BT Convention Centre. For more information on the event see www.ncri.org.uk/ncriconference
To read about our views of the event go to our conference pages.
Review Published
This report covers our achievments from our inception in 2009 until now. The report covers all aspects of the work carried on by our members. You can download a pdf version of the report from our publications section.
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