We have recently produced our first ever review. This report covers our achievments since our inception in 2009.

We hope it will give you a more indepth knowledge to who ICPV are, what ICPV do and why we do it.


ICPV Review 2011
Adobe Acrobat document [2.4 MB]

PPI Leaflets


We have prepared this leaflet encouraging patients to ask about clinical trials, donation of tissue for research and involvement in local cancer network service development and research read more


Members' Publications


Our members occasional contribute to journal publications read more


NCRI Conference 2011


For the NCRI Conference in Liverpool in November 2011 we had an abstract accepted "Independent Cancer Patients' Voice - speaking clearly and being heard" and presented a poster "Continuing the Conversation"             

Independent Cancer Patients' Voice - speaking clearly and being heard
Abstract NCRI 2011.pdf
Adobe Acrobat document [34.6 KB]
Continuing the Conversation
Adobe Acrobat document [1.5 MB]


ICPV Members Day, 4 April 2014

The 2014 members day was held at the Queen Elizabeth Hospital Birmingham. We had talks a number of new trials and studied and an opportunity for new members to discover what ICPV do and for old members to exchange news. Click here for more information. 

ICPV Supports the ALLTrials Campaign

To know more and add your support go to 

AllTrials logo

EORTC Cancer Survivorship Summit, Jan 2014

CSG and ICPV member Carolyn Morris attended this years event in Brussels. Click here for more information and to read her report.

San Antonio Breast Cancer Symposium, 2013

ICPV member Pat Fairbrother was awarded an Alamo Scholarship to attend SABCS in Dec. Click here to read her Hot Topic report.

Biobank Quality Standards

A number of ICPV members were involved in the Confederation of Cancer Biobanks (CCB) Harmonisation and Benchmarking Project that will lead to development of an accreditation scheme for biobanks. Two related standards, for quality management and data, have been created. Click here to download and read more about the CCB. 

VOICE 2014

ICPV and Barts Cancer Institute are working on the programme for the 1014 VOICE course. Click here for more information.

ICPV Summer School 2014

The ICPV summer school will be held in Brighton this year on Friday 4th and Saturday 5th July 2014.  The theme will be around supportive interventions, and confirmed speakers so far are Lesley Fallowfield speaking on communications skills providing patients with information on specific  trials, and Janet Dunn on clinical trial design.

Click here for more information.

CCB Newsletter

The latest edition of the CCB newsletter has an item by Maggie Wilcox and Derek Stewart on patient involvement in biobanking. See the full article here

Britain Against Cancer, London 10 Dec 2013

ICPV held a fringe meeting at this year's event "Bank Your Tissue" - for more details download the flyer below or for a review of the event click here.

Adobe Acrobat document [453.4 KB]

Using Cells & Tissue for Research

ICPV is working with trainee pathologists to promote awareness of the use of tissue in research with the aim of increasing tissue donation. As a first step we have produced a questionnaire for professionals and public. The form can be downloaded below. 

ICPV Survey-Tissue Use
ICPV Survey regarding Consent to Tissue [...]
Microsoft Word document [2.0 MB]

NCRI Conference 2013

ICPV members attended this years NCRI Conference in Liverpool from 3-6 Nov. Our session "The Issues Around Tissues" was a huge success.  For more information and to read a review by CLG Chair Richard Stephens go to our conferences page.

European Cancer Congress, Sept 2013

ICPV members recently attended this event. Click here for more information.


The lovely people at Barts are putting on yet another fund-raising event for our VOICE science for patient advocates course. 

This will be a Spinning event at Virgin Active Barbican on the 3rd October at 7.45.

For more sponsorship information got to our fundraising page.

VOICE (Vision On Information, Confidence and Engagement), Sept 2013

Eleven students attended the first ICPV training session at the Barts Cancer Institute in London from 9-13 Sept. The week was a resounding success and one we wish to repeat next year.

Click here for more information.


ICPV Spring Workshop

This very successfull 2-day workshop was held at the Beatson Institute in Glasgow on Thurs 2 -Fri 3 May 2013. For mor information and to read papers and reviews click here.

The Enemy Within: 50 years of fighting cancer

Vivienne Parry OBE tells the incredible story of our fight against cancer over the last 50 years. Through the eyes of scientists, researchers and patients, we see how far we have come and how far we have to go. Go to the link below to watch this fascinating film. The film is over 1hour long, but clicking the menu will give you the chance to dip into sections.

Breast Cancer in Older Women, March 2013

ICPV member Pat Fairbrother recently attended a meeting relating to the treatment of Breast Cancer in Older Women. Please click here to read her review of the day.

Health Research Association Stakeholder Events, Jan 2013

Several ICPV members joined health professionals and researchers at two HRA meetings in Jan.

The meetings were held to discuss changes made to consent regulations which would transfer to the HRA from the National Information Governance Board (NIGB) on 31st March 2013.

Click here to read more.

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