Our members have also contributed to journal publications over the years. The list below gives a flavour of the topics covered.
Authors - S. Gasson, J. Bliss, M. Jamal-Hanjani, M. Krebs, C. Swanton, M. Wilcox
Gasson et al - PPI editorial 2015.pdf
Adobe Acrobat document [150.9 KB]
Poster presented at British Psychosocial Oncology Society (BPOS) 2015
BPOS poster 2015.pdf
Adobe Acrobat document [257.5 KB]
Authors - S. Gasson, M. MacKenzie, A. Morgan, C. Morris, K. Randle, H. Stobart, L. Turner, M. Wilcox, Members of the Independent Cancer Patients' Voice (ICPV) and the Consumer Liaison Group (CLG)
Adobe Acrobat document [154.3 KB]
Authors include ICPV Member Maggie Wilcox.
Adobe Acrobat document [191.5 KB]
Authors include ICPV members Tom Haswell, Mairead MacKenzie and Maggie Wilcox
Adobe Acrobat document [700.8 KB]
CCB Lay Members Maggie Wilcox and Derek Stewart provide their thoughts on the current situation in patient involvement in biobanking
Adobe Acrobat document [373.7 KB]
Is it me or is it hot in here? A plea for more research into hot flushes
Morgan A, Fenlon DR; National Cancer Research Institute Clinical Studies Group Breast Cancer Working Party on Symptom Management
Clin. Oncol. 2013, vol. 25, pp 681-683
Poster presented at NCIN 2013,
Philip Quinlan & CCB Working Group 3 (inc Helen Bulbeck & Mairead MacKenzie)
NCIN2013 - Data standard poster.pdf
Adobe Acrobat document [761.9 KB]
ICPV members, Maggie, April, Mairead, Adrienne & Jacqui explain their work with the Tissue Bank
Adobe Acrobat document [1.1 MB]
Adobe Acrobat document [110.2 KB]
OPTIMA launch 2012 ClinOncol.pdf
Adobe Acrobat document [437.3 KB]
Adobe Acrobat document [1.3 MB]
QUEST ARTICLE-Breast Cancer Care-June 20[...]
Adobe Acrobat document [1.6 MB]
J Natl Cancer Inst Monogr-2011-Dowsett-1[...]
Adobe Acrobat document [394.3 KB]
Targeted intraoperative radiotherapy versus whole breast radiotherapy for breast cancer (TARGIT-A): An international, prospective, randomised, noninferiority phase 3 trial
JS Vaidya et al (including A Matthews)
Lancet Vol 376 p91-102, 2011
Service User Involvement In Cancer Care: The impact on Service Users
C Morris, P Cotterell, P Beresford & G Harlow Health
Expectations Volume 14, Issue 2, pages 159–169, June 2011
Opinion: Patient Engagement
Cancer Nursing Practice Vol 10 No 6 p9 2011
The capacity, impact and challenge of service users’ experiential knowledge
P Cotterell and C Morris
chapter in Critical Perspectives on User Involvement. Ed. M Barnes and P Cotterell, The Policy Press, in press
It’s Good To Talk
A comparison of a telephone helpline and website for cancer information.
R Hardyman, P Hardy, J Brody, R Stephens
Journal of Patient Education and Counselling, Vol 57, 2005
Award for ICPV Member
Many congratulations to ICPV member Margaret Grayson. On 21 April 2018 she received the Iris Colvin Lifetime Achievement Award for Health, presented by the Women’s Forum of Northern Ireland. This is very well deserved for her tireless work in furthering cancer research especially in Northern Ireland.
Warwick Clinical Trials
12 members of ICPV attended a residential Clinical Trials Course at the University of Warwick from 17th to 19th April 2018. The course was run by Professor Janet Dunn and covered the different types of studies undertaken; consent; trial design; statistics and bringing a drug to market. One of the highlights of the course was a visit to the West Midlands Surgical Training Centre where delegates had the privilege of seeing real body parts and having basic anatomy explained to them by the team. The delegates would like to thank Professor Janet Dunn for her outstanding enthusiasm and for her generous hospitality.
Open letter calling on Government to prioritise interests of cancer patients in Brexit negotiations
ICPV have come together with 18 other cancer charities to put our names to an open letter to Government. We want Government to prioritise seeking continued alignment with the EU drug licensing
process and Clinical Trials Regulation after Brexit. It is hoped this letter will be published in the national press in the near future.
See below to read.
2017 Summer School
The 2017 ICPV Summer School was held over two days in June at Stirling University. The theme of the event was Cancer Survivorship and Living Well Cancer. Click below for details of the course. More details.
A snapsot video of the the 2016 course is now available on YouTube VOICE2016
At the BACR/ECMC conference in July Maggie Wilcox and Mairead Mackenzie were persuaded to speak to the camera. Maggie gave a background to ICPV and our aims and objectives. While Mairead focused on her specific interests and activities. To view follow the links below.
July 2016 Conferences
ICPV members were busy this week with two conferences. The BACR/ECMC Joint Meeting on Therapeutic Interventions for Cancer Prevention was held in Bristol July18-19. The UK Breast Cancer Research Symposium was held in London from July 22-23. Click here for more information.
UK Therapeutic Cancer Prevention Network (UKTCPN)
An update from this new group was presented to the ECMC Annual Network Meeting in May 2016. Click here to download and read.
Call for immediate change to European Paediatric Medicine Regulation to save more lives of children and teens with cancer.
A few basic changes to European Law could speed up access to newer, kinder and potentially better drugs for more children and teenagers with cancer. Click to Sign the petition
Two years on from the start pioneering TRACERx lung cancer study. Click here For the latest news and patient views on this study.