Our members have also contributed to journal publications over the years. The list below gives a flavour of the topics covered.
Authors - S. Gasson, J. Bliss, M. Jamal-Hanjani, M. Krebs, C. Swanton, M. Wilcox
Gasson et al - PPI editorial 2015.pdf
Adobe Acrobat document [150.9 KB]
Poster presented at British Psychosocial Oncology Society (BPOS) 2015
BPOS poster 2015.pdf
Adobe Acrobat document [257.5 KB]
Authors - S. Gasson, M. MacKenzie, A. Morgan, C. Morris, K. Randle, H. Stobart, L. Turner, M. Wilcox, Members of the Independent Cancer Patients' Voice (ICPV) and the Consumer Liaison Group (CLG)
Adobe Acrobat document [154.3 KB]
Authors include ICPV Member Maggie Wilcox.
Adobe Acrobat document [191.5 KB]
Authors include ICPV members Tom Haswell, Mairead MacKenzie and Maggie Wilcox
Adobe Acrobat document [700.8 KB]
CCB Lay Members Maggie Wilcox and Derek Stewart provide their thoughts on the current situation in patient involvement in biobanking
Adobe Acrobat document [373.7 KB]
Is it me or is it hot in here? A plea for more research into hot flushes
Morgan A, Fenlon DR; National Cancer Research Institute Clinical Studies Group Breast Cancer Working Party on Symptom Management
Clin. Oncol. 2013, vol. 25, pp 681-683
Poster presented at NCIN 2013,
Philip Quinlan & CCB Working Group 3 (inc Helen Bulbeck & Mairead MacKenzie)
NCIN2013 - Data standard poster.pdf
Adobe Acrobat document [761.9 KB]
ICPV members, Maggie, April, Mairead, Adrienne & Jacqui explain their work with the Tissue Bank
Adobe Acrobat document [1.1 MB]
Adobe Acrobat document [110.2 KB]
OPTIMA launch 2012 ClinOncol.pdf
Adobe Acrobat document [437.3 KB]
Adobe Acrobat document [1.3 MB]
QUEST ARTICLE-Breast Cancer Care-June 20[...]
Adobe Acrobat document [1.6 MB]
J Natl Cancer Inst Monogr-2011-Dowsett-1[...]
Adobe Acrobat document [394.3 KB]
Targeted intraoperative radiotherapy versus whole breast radiotherapy for breast cancer (TARGIT-A): An international, prospective, randomised, noninferiority phase 3 trial
JS Vaidya et al (including A Matthews)
Lancet Vol 376 p91-102, 2011
Service User Involvement In Cancer Care: The impact on Service Users
C Morris, P Cotterell, P Beresford & G Harlow Health
Expectations Volume 14, Issue 2, pages 159–169, June 2011
Opinion: Patient Engagement
Cancer Nursing Practice Vol 10 No 6 p9 2011
The capacity, impact and challenge of service users’ experiential knowledge
P Cotterell and C Morris
chapter in Critical Perspectives on User Involvement. Ed. M Barnes and P Cotterell, The Policy Press, in press
It’s Good To Talk
A comparison of a telephone helpline and website for cancer information.
R Hardyman, P Hardy, J Brody, R Stephens
Journal of Patient Education and Counselling, Vol 57, 2005
Save the planet and donate to ICPV - send ecards go tour Fundraising page for mor information.
VOICE 2020 - Science for Patient Advocates - cancelled
Due to COVID-10 we have had to postpone the course for 2020. Click here for more information.
FAST-Forward Trial Results
A one-week course of radiotherapy in fewer but larger daily doses was found to be as safe and effective as standard three-week therapy for women following surgery for early stage breast cancer. Trial results now published. Two ICPV members provided the PPI for this key trial. Full details can be found on the ICR Website.
ICPV Brighton Summer School Aug 2019
ICPV was once again hosted by SHORE-C at the University of Sussex. Click here for more info.
San Antonio Breast Cancer Symposium, 2018
ICPV member Pat Fairbrother attended this event on an Alamo Foundation Scholarship. Click here to read her review.
Gap Analysis in Breast Surgery Published
The 2013 Breast Cancer Campaign gap analysis established breast cancer research priorities without a specific focus on surgical research or the role of surgeons on breast cancer research. This Review aims to identify opportunities and priorities for research in breast surgery to complement the 2013 gap analysis. Click here for more information
ICPV Review 2018
We have at last published a new edition of our review. This was achieved by a grant from Novartis. Click here for more information.
Award for ICPV Member
Many congratulations to ICPV member Margaret Grayson. On 21 April 2018 she received the Iris Colvin Lifetime Achievement Award for Health, presented by the Women’s Forum of Northern Ireland. This is very well deserved for her tireless work in furthering cancer research especially in Northern Ireland.
Warwick Clinical Trials
12 members of ICPV attended a residential Clinical Trials Course at the University of Warwick from 17th to 19th April 2018. The course was run by Professor Janet Dunn and covered the different types of studies undertaken; consent; trial design; statistics and bringing a drug to market. One of the highlights of the course was a visit to the West Midlands Surgical Training Centre where delegates had the privilege of seeing real body parts and having basic anatomy explained to them by the team. The delegates would like to thank Professor Janet Dunn for her outstanding enthusiasm and for her generous hospitality.
Open letter calling on Government to prioritise interests of cancer patients in Brexit negotiations
ICPV have come together with 18 other cancer charities to put our names to an open letter to Government. We want Government to prioritise seeking continued alignment with the EU drug licensing
process and Clinical Trials Regulation after Brexit. It is hoped this letter will be published in the national press in the near future.
See below to read.
2017 Summer School
The 2017 ICPV Summer School was held over two days in June at Stirling University. The theme of the event was Cancer Survivorship and Living Well Cancer. Click below for details of the course. More details.
A snapsot video of the the 2016 course is now available on YouTube VOICE2016
At the BACR/ECMC conference in July Maggie Wilcox and Mairead Mackenzie were persuaded to speak to the camera. Maggie gave a background to ICPV and our aims and objectives. While Mairead focused on her specific interests and activities. To view follow the links below.