Members' Publications

Our members have also contributed to journal publications over the years. The list below gives a flavour of the topics covered.

The Value of Patient and Public Involvement in Trial Design and Development, Clinical Oncology, 2015
Authors - S. Gasson, J. Bliss, M. Jamal-Hanjani, M. Krebs, C. Swanton, M. Wilcox
Gasson et al - PPI editorial 2015.pdf
Adobe Acrobat document [150.9 KB]
The AVALPROFS study Assessing the VALue of PROgression Free Survival
Poster presented at British Psychosocial Oncology Society (BPOS) 2015
BPOS poster 2015.pdf
Adobe Acrobat document [257.5 KB]
Comfort Blanket or Clinical Need? The Role of Follow-up for Cancer Survivors, Clinical Oncology, 26, 10, 619–621, Oct 2014
Authors - S. Gasson, M. MacKenzie, A. Morgan, C. Morris, K. Randle, H. Stobart, L. Turner, M. Wilcox, Members of the Independent Cancer Patients' Voice (ICPV) and the Consumer Liaison Group (CLG)
Adobe Acrobat document [154.3 KB]
Chemo- and Targeted Therapy for Women with HER2 Negative (or unknown) Advanced Breast Cancer: American Society of Clinical Oncology Clinical Practice Guideline, JCO, September 10, 2014, 32 (26)
Authors include ICPV Member Maggie Wilcox.
Adobe Acrobat document [191.5 KB]
Tracking Genomic Cancer Evolution for Precision Medicine: The Lung TRACERx Study, PLoS Biol. 2014 Jul 8;12(7)
Authors include ICPV members Tom Haswell, Mairead MacKenzie and Maggie Wilcox
Adobe Acrobat document [700.8 KB]
Involving patients/donors in biobanking: get on board
CCB Lay Members Maggie Wilcox and Derek Stewart provide their thoughts on the current situation in patient involvement in biobanking
Adobe Acrobat document [373.7 KB]

Is it me or is it hot in here? A plea for more research into hot flushes

Morgan A, Fenlon DR; National Cancer Research Institute Clinical Studies Group Breast Cancer Working Party on Symptom Management

Clin. Oncol. 2013, vol. 25, pp 681-683

NCRI-CCB-Breast Cancer Campaign - Data Standard
Poster presented at NCIN 2013,
Philip Quinlan & CCB Working Group 3 (inc Helen Bulbeck & Mairead MacKenzie)
NCIN2013 - Data standard poster.pdf
Adobe Acrobat document [761.9 KB]
Always Putting Patients First
ICPV members, Maggie, April, Mairead, Adrienne & Jacqui explain their work with the Tissue Bank
Adobe Acrobat document [1.1 MB]
Investment Biobanking-increased returns from tissue banks, Val Spiers & Adrienne Morgan
Tissue Bank,NatureClinOnc2013.pdf
Adobe Acrobat document [110.2 KB]
Selecting Breast Cancer Patients for Chemotherapy: The Opening of the UK OPTIMA Trial, J Bartlett et al (with Adrienne Morgan)
OPTIMA launch 2012 ClinOncol.pdf
Adobe Acrobat document [437.3 KB]
Time for a low-risk DCIS trial: harnessing public and patient involvement, Leslie Fallowfield, Adele Francis, Susan Catt, Mairead MacKenzie, Valeries Jenkins
Adobe Acrobat document [1.3 MB]
QUEST Trial, Breast Cancer Care Nursing Network News, June 2012, Jane Nicholson and Mairead MacKenzie
QUEST ARTICLE-Breast Cancer Care-June 20[...]
Adobe Acrobat document [1.6 MB]
Endocrine Therapy, New Biologicals, and New Study Designs for Presurgical Studies in Breast Cancer (with Maggie Wilcox)
J Natl Cancer Inst Monogr-2011-Dowsett-1[...]
Adobe Acrobat document [394.3 KB]

Targeted intraoperative radiotherapy versus whole breast radiotherapy for breast cancer (TARGIT-A): An international, prospective, randomised, noninferiority phase 3 trial

JS Vaidya et al (including A Matthews)

Lancet Vol 376 p91-102, 2011


Service User Involvement In Cancer Care: The impact on Service Users

C Morris, P Cotterell, P Beresford & G Harlow Health

Expectations Volume 14, Issue 2, pages 159–169, June 2011


Opinion: Patient Engagement

A Morgan

Cancer Nursing Practice Vol 10 No 6 p9 2011


The capacity, impact and challenge of service users’ experiential knowledge

P Cotterell and C Morris

chapter in Critical Perspectives on User Involvement. Ed. M Barnes and P Cotterell, The Policy Press, in press


It’s Good To Talk

A comparison of a telephone helpline and website for cancer information.

R Hardyman, P Hardy, J Brody, R Stephens

Journal of Patient Education and Counselling, Vol 57, 2005





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Save the planet and donate to ICPV - send ecards go tour Fundraising page for mor information.

VOICE 2020 - Science for Patient Advocates - cancelled

Due to COVID-10 we have had to postpone the course for 2020. Click here for more information.

FAST-Forward Trial Results

A one-week course of radiotherapy in fewer but larger daily doses was found to be as safe and effective as standard three-week therapy for women following surgery for early stage breast cancer. Trial results now published. Two ICPV members provided the PPI for this key trial. Full details can be found on the ICR Website.

ICPV Brighton Summer School Aug 2019

ICPV was once again hosted by SHORE-C at the University of Sussex. Click here for more info.

San Antonio Breast Cancer Symposium, 2018

ICPV member Pat Fairbrother attended this event on an Alamo Foundation Scholarship. Click here to read her review.

Gap Analysis in Breast Surgery Published

The 2013 Breast Cancer Campaign gap analysis established breast cancer research priorities without a specific focus on surgical research or the role of surgeons on breast cancer research. This Review aims to identify opportunities and priorities for research in breast surgery to complement the 2013 gap analysis. Click here for more information

ICPV Review 2018
We have at last published a new edition of our review. This was achieved by a grant from Novartis. Click here for more information. 

Award for ICPV Member

Many congratulations to ICPV member Margaret Grayson. On 21 April 2018 she received the Iris Colvin Lifetime Achievement Award for Health, presented by the Women’s Forum of Northern Ireland. This is very well deserved for her tireless work in furthering cancer research especially in Northern Ireland.

Warwick Clinical Trials Course
12 members of ICPV attended a residential Clinical Trials Course at the University of Warwick from 17th to 19th April 2018. The course was run by Professor Janet Dunn and covered the different types of studies undertaken; consent; trial design; statistics and bringing a drug to market. One of the highlights of the course was a visit to the West Midlands Surgical Training Centre where delegates had the privilege of seeing real body parts and having basic anatomy explained to them by the team. The delegates would like to thank Professor Janet Dunn for her outstanding enthusiasm and for her generous hospitality.

Open letter calling on Government to prioritise interests of cancer patients in Brexit negotiations

ICPV have come together with 18 other cancer charities to put our names to an open letter to Government. We want Government to prioritise seeking continued alignment with the EU drug licensing process and Clinical Trials Regulation after Brexit. It is hoped this letter will be published in the national press in the near future.
See below to read.

Open Letter to Government
ACMC EMA letter_FINAL v2.pdf
Adobe Acrobat document [363.5 KB]

2017 Summer School

The 2017 ICPV Summer School was held over two days in June at Stirling University. The theme of the event was Cancer Survivorship and Living Well Cancer. Click below for details of the course. More details.

VOICE 2016

A snapsot video of the the 2016 course is now available on YouTube VOICE2016

eCancer Videos

At the BACR/ECMC conference in July Maggie Wilcox and Mairead Mackenzie were persuaded to speak to the camera. Maggie gave a background to ICPV and our aims and objectives. While Mairead focused on her specific interests and activities. To view follow the links below.

Maggie Wilcox

Mairead MacKenzie

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