Publications

We have recently produced our third review. This report covers our achievments since our first review was published in 2014.

We hope it will give you a more indepth knowledge to who ICPV are, what ICPV do and why we do it.

 

ICPV Review 2018
ICPV_A5_Report_2018_FINAL.pdf
Adobe Acrobat document [1.9 MB]
ICPV Review 2014
ICPV_Report_2014.pdf
Adobe Acrobat document [3.8 MB]
ICPV Review 2011
ICPV_Report.pdf
Adobe Acrobat document [2.4 MB]

Newsletter - The Voice

As ICPV grows we thought the idea of newsletter would help keep members up-to-date with all our activities. 

We need a regular supply of material if this is to be successful. It does not have to be related to ICPV activity and it would be good to receive feedback from members’ involvement in other groups, recommendations
regarding articles, events attended, opportunities for promoting ICPV etc.

We hope to produce this quarterly but will start with bi-annualy.

The Voice Winter 2015-2016.pdf
Adobe Acrobat document [6.2 MB]
The Voice Summer 2015.pdf
Adobe Acrobat document [4.1 MB]
The Voice Dec 2014.pdf
Adobe Acrobat document [1.0 MB]

PPI Leaflets

 

We have prepared this leaflet encouraging patients to ask about clinical trials, donation of tissue for research and involvement in local cancer network service development and research read more

 

Members' Publications

 

Our members occasional contribute to journal publications read more

 

NCRI Conference 2011

 

For the NCRI Conference in Liverpool in November 2011 we had an abstract accepted "Independent Cancer Patients' Voice - speaking clearly and being heard" and presented a poster "Continuing the Conversation"             

Abstract
Independent Cancer Patients' Voice - speaking clearly and being heard
Abstract NCRI 2011.pdf
Adobe Acrobat document [34.6 KB]
Poster
Continuing the Conversation
ICPV_NCRI_Poster_28Oct11.pdf
Adobe Acrobat document [1.5 MB]

 

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News

ICPV Review 2018
We have at last published a new edition of our review. This was achieved by a grant from Novartis. Click here for more information.
 

Award for ICPV Member

Many congratulations to ICPV member Margaret Grayson. On 21 April 2018 she received the Iris Colvin Lifetime Achievement Award for Health, presented by the Women’s Forum of Northern Ireland. This is very well deserved for her tireless work in furthering cancer research especially in Northern Ireland.

Warwick Clinical Trials Course
12 members of ICPV attended a residential Clinical Trials Course at the University of Warwick from 17th to 19th April 2018. The course was run by Professor Janet Dunn and covered the different types of studies undertaken; consent; trial design; statistics and bringing a drug to market. One of the highlights of the course was a visit to the West Midlands Surgical Training Centre where delegates had the privilege of seeing real body parts and having basic anatomy explained to them by the team. The delegates would like to thank Professor Janet Dunn for her outstanding enthusiasm and for her generous hospitality.

Open letter calling on Government to prioritise interests of cancer patients in Brexit negotiations

ICPV have come together with 18 other cancer charities to put our names to an open letter to Government. We want Government to prioritise seeking continued alignment with the EU drug licensing process and Clinical Trials Regulation after Brexit. It is hoped this letter will be published in the national press in the near future.
See below to read.

Open Letter to Government
ACMC EMA letter_FINAL v2.pdf
Adobe Acrobat document [363.5 KB]

2017 Summer School

The 2017 ICPV Summer School was held over two days in June at Stirling University. The theme of the event was Cancer Survivorship and Living Well Cancer. Click below for details of the course. More details.

VOICE 2016

A snapsot video of the the 2016 course is now available on YouTube VOICE2016

eCancer Videos

At the BACR/ECMC conference in July Maggie Wilcox and Mairead Mackenzie were persuaded to speak to the camera. Maggie gave a background to ICPV and our aims and objectives. While Mairead focused on her specific interests and activities. To view follow the links below.

Maggie Wilcox

Mairead MacKenzie

July 2016 Conferences

ICPV members were busy this week with two conferences. The BACR/ECMC Joint Meeting on Therapeutic Interventions for Cancer Prevention was held in Bristol July18-19. The UK Breast Cancer Research Symposium was held in London from July 22-23. Click here for more information.

UK Therapeutic Cancer Prevention Network (UKTCPN)

An update from this new group was presented to the ECMC Annual Network Meeting in May 2016. Click here to download and read. 

UNITE2CURE

Call for immediate change to European Paediatric Medicine Regulation to save more lives of children and teens with cancer.
A few basic changes to European Law could speed up access to newer, kinder and potentially better drugs for more children and teenagers with cancer. Click to Sign the petition 

TRACERx

Two years on from the start pioneering TRACERx lung cancer study. Click here For the latest news and patient views on this study. 

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