We have recently produced our third review. This report covers our achievments since our first review was published in 2014.
We hope it will give you a more indepth knowledge to who ICPV are, what ICPV do and why we do it.
Newsletter - The Voice
As ICPV grows we thought the idea of newsletter would help keep members up-to-date with all our activities.
We need a regular supply of material if this is to be successful. It does not have to be related to ICPV activity and it would be good to receive feedback from members’ involvement in
other groups, recommendations
regarding articles, events attended, opportunities for promoting ICPV etc.
We hope to produce this quarterly but will start with bi-annualy.
We have prepared this leaflet encouraging patients to ask about clinical trials, donation of tissue for research and involvement in local cancer network service development and research read more
Our members occasional contribute to journal publications read more
NCRI Conference 2011
For the NCRI Conference in Liverpool in November 2011 we had an abstract accepted "Independent Cancer Patients' Voice - speaking clearly and being heard" and presented a poster "Continuing the Conversation"
Independent Cancer Patients' Voice - speaking clearly and being heard
Abstract NCRI 2011.pdf
Adobe Acrobat document [34.6 KB]
Long Term Survivor Study
Continuum Life Sciences are looking for volunteers who have survived aggressive, difficult to treat cancer against all odds to take part in their Long-Term Survivor of Cancer Study. For more information and how you can join go to their website.
Save the planet and donate to ICPV - send ecards go tour Fundraising page for mor information.
VOICE 2020 - Science for Patient Advocates - cancelled
Due to COVID-10 we have had to postpone the course for 2020. Click here for more information.
FAST-Forward Trial Results
A one-week course of radiotherapy in fewer but larger daily doses was found to be as safe and effective as standard three-week therapy for women following surgery for early stage breast cancer. Trial results now published. Two ICPV members provided the PPI for this key trial. Full details can be found on the ICR Website.
ICPV Brighton Summer School Aug 2019
ICPV was once again hosted by SHORE-C at the University of Sussex. Click here for more info.
San Antonio Breast Cancer Symposium, 2018
ICPV member Pat Fairbrother attended this event on an Alamo Foundation Scholarship. Click here to read her review.
Gap Analysis in Breast Surgery Published
The 2013 Breast Cancer Campaign gap analysis established breast cancer research priorities without a specific focus on surgical research or the role of surgeons on breast cancer research. This Review aims to identify opportunities and priorities for research in breast surgery to complement the 2013 gap analysis. Click here for more information
ICPV Review 2018
We have at last published a new edition of our review. This was achieved by a grant from Novartis. Click here for more information.
Award for ICPV Member
Many congratulations to ICPV member Margaret Grayson. On 21 April 2018 she received the Iris Colvin Lifetime Achievement Award for Health, presented by the Women’s Forum of Northern Ireland. This is very well deserved for her tireless work in furthering cancer research especially in Northern Ireland.
At the BACR/ECMC conference in July Maggie Wilcox and Mairead Mackenzie were persuaded to speak to the camera. Maggie gave a background to ICPV and our aims and objectives. While Mairead focused on her specific interests and activities. To view follow the links below.