A study looking at developing a new way to report side effects of treatment online from home
This study is looking at developing a new way for people to report any side effects of treatment online from home.
All cancer treatments have side effects. The researchers want to develop a new way for people to report any side effects they may have. The new way is for people to use their computer at home to go onto a website, fill in an electronic questionnaire and receive information about how to manage the side effect. If the side effect is serious the website is set up to alert a member of the hospital staff and they will contact the person. All the information will be stored in the person’s hospital records so that the hospital staff can see it.
The researchers hope that this will allow people to manage their side effects better and help doctors get a better picture of the side effects people have. They also hope it will help people get medical attention for severe side effects when needed.
The first step is to develop the questionnaire for people to use on the website. The researchers will ask people having treatment at the Bexley Wing, St James’ University Hospital Leeds to complete the questionnaire. They will interview them afterwards to find out what they think about it.
The aims of this study include finding out
- If the questionnaire is understandable
- How well the questions relate to people’s experience
- How easy it is to complete
For more information go to http://cancerhelp.cancerresearchuk.org/trials/trials-search/
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VOICE 2020 - Science for Patient Advocates - cancelled
Due to COVID-10 we have had to postpone the course for 2020. Click here for more information.
FAST-Forward Trial Results
A one-week course of radiotherapy in fewer but larger daily doses was found to be as safe and effective as standard three-week therapy for women following surgery for early stage breast cancer. Trial results now published. Two ICPV members provided the PPI for this key trial. Full details can be found on the ICR Website.
ICPV Brighton Summer School Aug 2019
ICPV was once again hosted by SHORE-C at the University of Sussex. Click here for more info.
San Antonio Breast Cancer Symposium, 2018
ICPV member Pat Fairbrother attended this event on an Alamo Foundation Scholarship. Click here to read her review.
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ICPV Review 2018
We have at last published a new edition of our review. This was achieved by a grant from Novartis. Click here for more information.
Award for ICPV Member
Many congratulations to ICPV member Margaret Grayson. On 21 April 2018 she received the Iris Colvin Lifetime Achievement Award for Health, presented by the Women’s Forum of Northern Ireland. This is very well deserved for her tireless work in furthering cancer research especially in Northern Ireland.
Warwick Clinical Trials
12 members of ICPV attended a residential Clinical Trials Course at the University of Warwick from 17th to 19th April 2018. The course was run by Professor Janet Dunn and covered the different types of studies undertaken; consent; trial design; statistics and bringing a drug to market. One of the highlights of the course was a visit to the West Midlands Surgical Training Centre where delegates had the privilege of seeing real body parts and having basic anatomy explained to them by the team. The delegates would like to thank Professor Janet Dunn for her outstanding enthusiasm and for her generous hospitality.
Open letter calling on Government to prioritise interests of cancer patients in Brexit negotiations
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process and Clinical Trials Regulation after Brexit. It is hoped this letter will be published in the national press in the near future.
See below to read.
2017 Summer School
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A snapsot video of the the 2016 course is now available on YouTube VOICE2016
At the BACR/ECMC conference in July Maggie Wilcox and Mairead Mackenzie were persuaded to speak to the camera. Maggie gave a background to ICPV and our aims and objectives. While Mairead focused on her specific interests and activities. To view follow the links below.