A study looking at developing a new way to report side effects of treatment online from home
This study is looking at developing a new way for people to report any side effects of treatment online from home.
All cancer treatments have side effects. The researchers want to develop a new way for people to report any side effects they may have. The new way is for people to use their computer at home to go onto a website, fill in an electronic questionnaire and receive information about how to manage the side effect. If the side effect is serious the website is set up to alert a member of the hospital staff and they will contact the person. All the information will be stored in the person’s hospital records so that the hospital staff can see it.
The researchers hope that this will allow people to manage their side effects better and help doctors get a better picture of the side effects people have. They also hope it will help people get medical attention for severe side effects when needed.
The first step is to develop the questionnaire for people to use on the website. The researchers will ask people having treatment at the Bexley Wing, St James’ University Hospital Leeds to complete the questionnaire. They will interview them afterwards to find out what they think about it.
The aims of this study include finding out
- If the questionnaire is understandable
- How well the questions relate to people’s experience
- How easy it is to complete
For more information go to http://cancerhelp.cancerresearchuk.org/trials/trials-search/
Long Term Survivor Study
Continuum Life Sciences are looking for volunteers who have survived aggressive, difficult to treat cancer against all odds to take part in their Long-Term Survivor of Cancer Study. For more information and how you can join go to their website.
Save the planet and donate to ICPV - send ecards go tour Fundraising page for mor information.
VOICE 2020 - Science for Patient Advocates - cancelled
Due to COVID-10 we have had to postpone the course for 2020. Click here for more information.
FAST-Forward Trial Results
A one-week course of radiotherapy in fewer but larger daily doses was found to be as safe and effective as standard three-week therapy for women following surgery for early stage breast cancer. Trial results now published. Two ICPV members provided the PPI for this key trial. Full details can be found on the ICR Website.
ICPV Brighton Summer School Aug 2019
ICPV was once again hosted by SHORE-C at the University of Sussex. Click here for more info.
San Antonio Breast Cancer Symposium, 2018
ICPV member Pat Fairbrother attended this event on an Alamo Foundation Scholarship. Click here to read her review.
Gap Analysis in Breast Surgery Published
The 2013 Breast Cancer Campaign gap analysis established breast cancer research priorities without a specific focus on surgical research or the role of surgeons on breast cancer research. This Review aims to identify opportunities and priorities for research in breast surgery to complement the 2013 gap analysis. Click here for more information
ICPV Review 2018
We have at last published a new edition of our review. This was achieved by a grant from Novartis. Click here for more information.
Award for ICPV Member
Many congratulations to ICPV member Margaret Grayson. On 21 April 2018 she received the Iris Colvin Lifetime Achievement Award for Health, presented by the Women’s Forum of Northern Ireland. This is very well deserved for her tireless work in furthering cancer research especially in Northern Ireland.
At the BACR/ECMC conference in July Maggie Wilcox and Mairead Mackenzie were persuaded to speak to the camera. Maggie gave a background to ICPV and our aims and objectives. While Mairead focused on her specific interests and activities. To view follow the links below.