Accessing the Value to Patients of Progression Free Survival

A 3-year study on Progression Free Survival (PFS).  The study’s aim is to contribute an empirically derived patient perspective about the use of progression-free survival as an appropriate endpoint in clinical trials of cancer therapy. PFS is the length of time after cancer treatment that a patient lives with the disease without tests showing that it is worsening. Although PFS is used in clinical trials as a means of testing how well a new treatment might work, a longer PFS does not necessarily mean that overall survival is improved. So if patients derive PFS benefits but overall live no longer and they suffer unacceptable side-effects from the treatment then this PFS may be of little value. This is an extremely important study that has generated much interest already.

 For more information go to - http://shore-c.sussex.ac.uk/pfs.htm 

Poster Presented at ASCO, 2014
ICPV Members Mairead MacKenzie and Jacqui Gath collaborated with SHORE-C Team Lesley Fallowfield, Lucy Matthews, Susan Catt and Valerie Jenkins
Adobe Acrobat document [552.5 KB]


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VOICE 2022

We are pleased to announce that the VOICE course will be residential and held at Barts Cancer Centre from 4-8 Sept. Click here for further details.


OPTIMA is a patient driven clinical study for people with hormone sensitive early breast cancer. 

OPTIMA aims to improve the way we make decisions about whom we offer chemotherapy to following surgery.
Check the website link for more information or listen to the short video to explain the trial.


Immunology Talk

On the 25th March we held an interactive talk and discussion on immunology.

The talk was given by Dr Edd James, Cancer Immunologist from the university of Southampton. The tallk is now available on YouTube - click here to listen. 


Long Term Survivor Study 

Continuum Life Sciences are looking for volunteers who have survived aggressive, difficult to treat cancer against all odds to take part in their Long-Term Survivor of Cancer Study. For more information and how you can join go to their website.


Save the planet and donate to ICPV - send ecards go tour Fundraising page for mor information.

FAST-Forward Trial Results

A one-week course of radiotherapy in fewer but larger daily doses was found to be as safe and effective as standard three-week therapy for women following surgery for early stage breast cancer. Trial results now published. Two ICPV members provided the PPI for this key trial. Full details can be found on the ICR Website.

ICPV Brighton Summer School Aug 2019

ICPV was once again hosted by SHORE-C at the University of Sussex. Click here for more info.

San Antonio Breast Cancer Symposium, 2018

ICPV member Pat Fairbrother attended this event on an Alamo Foundation Scholarship. Click here to read her review.

Gap Analysis in Breast Surgery Published

The 2013 Breast Cancer Campaign gap analysis established breast cancer research priorities without a specific focus on surgical research or the role of surgeons on breast cancer research. This Review aims to identify opportunities and priorities for research in breast surgery to complement the 2013 gap analysis. Click here for more information

ICPV Review 2018
We have at last published a new edition of our review. This was achieved by a grant from Novartis. Click here for more information. 

Award for ICPV Member

Many congratulations to ICPV member Margaret Grayson. On 21 April 2018 she received the Iris Colvin Lifetime Achievement Award for Health, presented by the Women’s Forum of Northern Ireland. This is very well deserved for her tireless work in furthering cancer research especially in Northern Ireland.

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