Clinical Trials & Research
Our members are involved in the design and running of a number of clinical studies, helping to ensure that they are targeted effectively. We work as advocates at a strategic level with clinicians and clinical researchers in order to improve clinical research and outcomes for all cancer patients.
We get involved in many different ways. For some studies, we input into the very earliest stages of trial development, contributing to the development of funding proposals. We read and comment on trial protocols and on patient information materials to make it more likely that patient will enrol. Our members sit on the steering committees of many active trials to ensure that the patient perspective is considered.
In recent years our members collaborated on a wide range of studies, including: OPTIMA, a new clinical study that should ultimately reduce the amount of chemotherapy given to breast cancer patients; IMPORT HIGH & LOW (two trials looking at different ways of giving radiotherapy to high- and low-risk breast cancer patients ); POETIC ( a trial looking at whether having hormone therapy before and after surgery improves the outlook for post-menopausal women with breast cancer); and iBREAST (a trial seeking to determine whether innovative alternative follow up methods are equivalent to traditional specialist hospital-based follow-up in terms of survival and patient perception of living with cancer).
We have supported and continue to work with the Breast Cancer Campaign’s tissue bank board of management and tissue access committee.
Please look at the links on the left to see a sample current trials (both in development and running) that ICPV has at least one member on the team. Further information on our activities is available in our review which can be found on the publications page.
VOICE 2020 - Science for Patient Advocates
The next VOICE Course will be run from 31 Aug to 5 Sept 2020. Click here for more information.
ICPV Brighton Summer School Aug 2019
ICPV was once again hosted by SHORE-C at the University of Sussex. Click here for more info.
San Antonio Breast Cancer Symposium, 2018
ICPV member Pat Fairbrother attended this event on an Alamo Foundation Scholarship. Click here to read her review.
Gap Analysis in Breast Surgery Published
The 2013 Breast Cancer Campaign gap analysis established breast cancer research priorities without a specific focus on surgical research or the role of surgeons on breast cancer research. This Review aims to identify opportunities and priorities for research in breast surgery to complement the 2013 gap analysis. Click here for more information
ICPV Review 2018
We have at last published a new edition of our review. This was achieved by a grant from Novartis. Click here for more information.
Award for ICPV Member
Many congratulations to ICPV member Margaret Grayson. On 21 April 2018 she received the Iris Colvin Lifetime Achievement Award for Health, presented by the Women’s Forum of Northern Ireland. This is very well deserved for her tireless work in furthering cancer research especially in Northern Ireland.
Warwick Clinical Trials
12 members of ICPV attended a residential Clinical Trials Course at the University of Warwick from 17th to 19th April 2018. The course was run by Professor Janet Dunn and covered the different types of studies undertaken; consent; trial design; statistics and bringing a drug to market. One of the highlights of the course was a visit to the West Midlands Surgical Training Centre where delegates had the privilege of seeing real body parts and having basic anatomy explained to them by the team. The delegates would like to thank Professor Janet Dunn for her outstanding enthusiasm and for her generous hospitality.
Open letter calling on Government to prioritise interests of cancer patients in Brexit negotiations
ICPV have come together with 18 other cancer charities to put our names to an open letter to Government. We want Government to prioritise seeking continued alignment with the EU drug licensing
process and Clinical Trials Regulation after Brexit. It is hoped this letter will be published in the national press in the near future.
See below to read.
2017 Summer School
The 2017 ICPV Summer School was held over two days in June at Stirling University. The theme of the event was Cancer Survivorship and Living Well Cancer. Click below for details of the course. More details.
A snapsot video of the the 2016 course is now available on YouTube VOICE2016
At the BACR/ECMC conference in July Maggie Wilcox and Mairead Mackenzie were persuaded to speak to the camera. Maggie gave a background to ICPV and our aims and objectives. While Mairead focused on her specific interests and activities. To view follow the links below.