Clinical Trials & Research
Our members are involved in the design and running of a number of clinical studies, helping to ensure that they are targeted effectively. We work as advocates at a strategic level with clinicians and clinical researchers in order to improve clinical research and outcomes for all cancer patients.
We get involved in many different ways. For some studies, we input into the very earliest stages of trial development, contributing to the development of funding proposals. We read and comment on trial protocols and on patient information materials to make it more likely that patient will enrol. Our members sit on the steering committees of many active trials to ensure that the patient perspective is considered.
In recent years our members collaborated on a wide range of studies, including: OPTIMA, a new clinical study that should ultimately reduce the amount of chemotherapy given to breast cancer patients; IMPORT HIGH & LOW (two trials looking at different ways of giving radiotherapy to high- and low-risk breast cancer patients ); POETIC ( a trial looking at whether having hormone therapy before and after surgery improves the outlook for post-menopausal women with breast cancer); and iBREAST (a trial seeking to determine whether innovative alternative follow up methods are equivalent to traditional specialist hospital-based follow-up in terms of survival and patient perception of living with cancer).
We have supported and continue to work with the Breast Cancer Campaign’s tissue bank board of management and tissue access committee.
Please look at the links on the left to see a sample current trials (both in development and running) that ICPV has at least one member on the team. Further information on our activities is available in our review which can be found on the publications page.
Long Term Survivor Study
Continuum Life Sciences are looking for volunteers who have survived aggressive, difficult to treat cancer against all odds to take part in their Long-Term Survivor of Cancer Study. For more information and how you can join go to their website.
Save the planet and donate to ICPV - send ecards go tour Fundraising page for mor information.
VOICE 2020 - Science for Patient Advocates - cancelled
Due to COVID-10 we have had to postpone the course for 2020. Click here for more information.
FAST-Forward Trial Results
A one-week course of radiotherapy in fewer but larger daily doses was found to be as safe and effective as standard three-week therapy for women following surgery for early stage breast cancer. Trial results now published. Two ICPV members provided the PPI for this key trial. Full details can be found on the ICR Website.
ICPV Brighton Summer School Aug 2019
ICPV was once again hosted by SHORE-C at the University of Sussex. Click here for more info.
San Antonio Breast Cancer Symposium, 2018
ICPV member Pat Fairbrother attended this event on an Alamo Foundation Scholarship. Click here to read her review.
Gap Analysis in Breast Surgery Published
The 2013 Breast Cancer Campaign gap analysis established breast cancer research priorities without a specific focus on surgical research or the role of surgeons on breast cancer research. This Review aims to identify opportunities and priorities for research in breast surgery to complement the 2013 gap analysis. Click here for more information
ICPV Review 2018
We have at last published a new edition of our review. This was achieved by a grant from Novartis. Click here for more information.
Award for ICPV Member
Many congratulations to ICPV member Margaret Grayson. On 21 April 2018 she received the Iris Colvin Lifetime Achievement Award for Health, presented by the Women’s Forum of Northern Ireland. This is very well deserved for her tireless work in furthering cancer research especially in Northern Ireland.
At the BACR/ECMC conference in July Maggie Wilcox and Mairead Mackenzie were persuaded to speak to the camera. Maggie gave a background to ICPV and our aims and objectives. While Mairead focused on her specific interests and activities. To view follow the links below.